Study Details

We are conducting interviews and surveys with professionals who review research and with members of the public.

Our study will help policy makers to make recommendations about how to conduct Research on Medical Practices ethically and how to communicate with patients about it.

Main study questions:

  • What do people think about the risks and benefits of Research on Medical Practices?
  • What do people think about different approaches to letting patients know this type of research is being conducted?

Study Progress

The ROMP Ethics Study began in October 2013. Completed and planned milestones are listed below.

Completed Activities
Planned Activities
Study Instruments
Study Publications
  • Conducted focus groups with IRB members at the University of Washington, Seattle Children’s, and Stanford.
  • Developed a survey for professionals who review research
  • In collaboration with Public Responsibility in Medicine and Research (PRIM&R), surveyed a sample of PRIM&R members.
  • In collaboration with Booster Shot Media, developed three informational videos for use in public surveys.
  • Conducted focus groups with patients and parents at the University of Washington, Seattle Children’s, and Stanford.
  • Developed a survey for patients and the general public.
  • In collaboration with Turner Research, surveyed a nationally representative population group
  • In collaboration with Providence Health System, surveyed patients who receive specialty medical care in Spokane, Washington (Jan-April 2015).
  • Further explored issues of risk, consent, and willingness to participate via phone interviews with 25 of the Spokane survey participants (May 2015).
  • In collaboration with Survey Sampling International, conducted 45 cognitive interviews to evaluate and improve survey questions (Aug-Oct 2015).
  • In collaboration with Survey Sampling International, developed a revised population survey to evaluate impact of our animated narrative video on knowledge and attitudes compared to illustrated narrative (comics), informational video, and text information (Oct-Nov 2015).